Disability Visibility: First-Person Stories from the Twenty-first Century
Quotes from the Book
Disability is not something an individual overcomes. I'm still disabled. I'm still Deafblind. People with disabilities are successful when we develop alternative techniques and our communities choose inclusion.
Navigating ableist situations is like traversing the muckiest mud pit. Ableism runs so deep in our society that most ableists don't recognize their actions as ableist. They coat ableism in sweetness, then expect applause for their "good" deeds. Attempts to explain the ableism behind the "good deeds" get brushed aside as sensitive, angry, and ungrateful.
All of our bodies change over time. We all deserve dignity and access at every stage in our lives. Most people will need to seek accessibility solutions at some point, whether for a family member, a colleague, or for oneself. Disability is part of the human experience. We all need to engage in the work to make our world accessible to everyone. Inclusion is a choice.
Society frames people with disabilities as incapable of contributing. And yet, these kids treat me like someone with gifts to share and lessons to teach.
It's a sighted, hearing classroom, in a sighted, hearing school, in a sighted, hearing society. They designed this environment for people who can see and hear. In this environment, I'm disabled. They place the burden on me to step out of my world and reach into theirs
Sighted or blind, Deaf or hearing, each of us holds just the tiniest fraction of the world's wisdom. Admitting we don't know everything will aid us on this Trek for Knowledge.
Communities designed with just one kind of person in mind isolate those of us defying our narrow definition of personhood.
People with disabilities succeed when communities choose to be inclusive.
I can't control their actions, but I can control the messages I send
Love takes time. Love forms through the expression of genuine appreciation, the creation of clear boundaries, the practice of forgiveness and mutual respect
We can disentangle control from love
LCB instructors have warned us about the hierarchy of sight, a system where society privileges those who have more sight. Blind people sometimes internalize the hierarchy of sight, with those who are totally blind deferring to the partially sighted, and the partially sighted deferring to the fully sighted. Such classifications divide the blind community and contribute to our oppression. The training program has been teaching us to recognize and resist the oppressive system. I don't want a blind world where the one-eyed man is automatically king.
Writing is advocacy. Writing is strength. Writing is power.
Somehow, someway, I'm going to create a community of people who believed that disability itself is not a barrier; the biggest barriers are social, physical, and digital.
Whether one is American, German or Vietnamese, one can understand the story of a small group of people fighting for their freedom against a larger, more powerful group.
By focusing all my energy on proving my fearlessness, framing the situation as me-against-them, I perpetuated and guaranteed my own exclusion.
The court ruled that the ADA does in fact cover internet-based businesses. Deciding otherwise would lead to absurd results, like excluding services provided door-to-door or over the phone. Many companies provided services over the phone or door-to-door in 1990 when Congress passed the ADA, and Congress expected the statue to cover these "places." The court affirmed that Congress intended for the ADA to be a broad statute that evolves with technology. "Now that the Internet plays such a critical role in the personal and professional lives of Americans, excluding disabled persons from access to covered entities that use it as their principal means of reaching the public would defeat the purpose of this important civil rights legislation.
Here at LCB, I'm surrounded by people who understand that blindness is just limited eyesight. With the right tools and training, blind people can compete as equals with sighted peers. Places like LCB exist to help blind people gain the tools and training to succeed. Sadly, our views on blindness are a minority view outside of these walls.
I'm so glad I decided to step back and let Rosa find Tom on her own. She deserved to experience the thrill of discovery. Growing up as a blind person in a sighted world, there have been many instances where well-meaning sighted people denied me that thrill. We all need to get better at knowing when to help and when to back off and say, "Check every corner.
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About Haben Girma
About the book
Born with deaf-blindness, Girma grew up with enough vision to know when someone was in front of her and enough hearing to know when someone close to her was talking. However, she had difficulty reading facial features or distinguishing people in group conversations. Relying on her own problem-solving skills, Girma overcame roadblocks while simultaneously obtaining her undergraduate and then law degree.
In the process, she developed new methods of communication and found her calling in advocating for the deaf and blind communities in more accessible communication, education, and employment opportunities. As a lawyer and advocate, Girma shares a collection of vignettes illustrating the defining points in her life. She peppers her writing with a witty sense of humor and showcases her strength in facing obstacles, along with challenging antiquated societal beliefs about people with disab
Book details
- First published
- 2019
- Author
- Haben Girma
- Genre
- Nonfiction
- Goodreads rating
- 4.19 (6k ratings)
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